Honoring a visionary & pioneer


Henri Termeer

“The nature of rare diseases is that it is global.  Treating all patients became natural. It was not a choice. We would treat regardless of circumstance. We became the lifeline for these patients.”


Henri A. Termeer, an icon of the biotech industry and visionary Chief Executive Officer of Genzyme, prior to its acquisition by Sanofi, passed away unexpectedly in May of last year at the age of 71, leaving behind a legacy of entrepreneurial culture that harnesses cutting edge science and innovation to better the lives of patients afflicted with rare genetic diseases. Henri was a forward-thinker whose principles, intuition, community-mindedness, and unwavering determination and commitment to patients have truly transformed the biotech community and its approach to orphan diseases.

Henri set a standard that every patient would be treated regardless of their location or ability to pay. He forged the path for building a sustainable rare disease business, and many have followed his footsteps. Retiring from Genzyme in 2011, after his 28-year tenure, Henri led the company’s growth from a small start-up of 20 to 12,000 employees globally serving patients in more than 90 countries all while establishing Massachusetts as the mecca of biotech.

To honor Henri's legacy and celebrate his many contributions to a thriving industry that he helped build, a number of Henri's friends and industry leaders have come together to form the Henri A. Termeer Tribute Committee, co-chaired by Robert Coughlin, CEO, MassBIO and John Maraganore, CEO, Alnylam, working closely with Belinda and Adriana Termeer.  Donations will be used to fund the commissioning and installation of the sculpture in a suitable setting on what will soon be renamed as Termeer Square in Cambridge, and to maintain the work and setting in perpetuity, as well as potential extensions of this endeavor to honor Henri’s legacy in the future.  Visit termeertribute.org for more details, a growing tribute to Henri in words and photos and updates from the Committee.

Make a Contribution:

For gifts of $5,000 or more, we encourage mailing a check to the following address:

MassBioEd Foundation

c/o Henri A Termeer Tribute

300 Technology Square, 8th Floor

Cambridge, MA 02139


($10, $25, $50, $100, any amount helps)
You can find your CVV code here: (Numbers on rear side of credit card to the right of the signature panel) close